“Pain may be my constant companion since the day I was born.” – Christopher Shannon
Since last season, Madi has found out that she is an ever “rare-er” breed of unicorn, as she got a newer and more correct diagnosis in 2019 that – for a while – shook her sense of identity. Ullrich congenital muscular dystrophy.
In this episode, Madi sits down with Christopher Shannon who has a different, but similarly rare collagen disorder. They spoke about some of the ways the medical system interacted with them as kids, about the sometimes-cruel nature of hope and how they deal with the difficulties that come along with these rare disease diagnoses.
Hosts: Madison Lawson, Rebecca Smith
Producer: Alec Stutson
Supervising Producers: Aaron Hay, Rebecca Smith
Managing Editor: Ryan Famuliner
Online and Social: Nathan Lawrence