Zellweger Spectrum Disorder | KBIA

Zellweger Spectrum Disorder

Rebecca Smith / KBIA

Rebekah Hasty from Richland, Missouri, traveled nearly four hours to Pere Marquette state park outside Grafton, Illinois. She had brought her partner, Shane Worley, as well as their two grandchildren, Symphony and Jimi, to a regional family meetup for individuals affected by Zellweger Spectrum Disorder.

There were many activities planned that weekend including a river cruise, art projects and simply sitting around and talking about family members who are affected by this rare disorder.