ALS | KBIA

A grant is helping NextGen Precision Health break down barriers for rural ALS patients

Anna Spidel

A grant awarded to NextGen Precision Health Institute by the ALS Association will give $400,000 over 4 years to NextGen researchers to help them reach more rural patients.

Jaime Basnett is a nurse practitioner and has been with MU Health Care since 1998, first starting out as a bedside nurse. In early April 2024, Basnett became the ALS research program manager with NextGen Precision Health - a position funded by an ALS Association grant called the trial capacity award, which was awarded to NextGen in 2023.

Health & Wealth

Improving access to care for rural ALS patients: "How can we make it easier?"

Anna Spidel

Jaime Basnett is the ALS research program manager at NextGen Precision Health. She spoke about challenges rural ALS patients can face seeking care and what NextGen is doing to help.

Dave Adox, 44 here, was diagnosed with ALS at 42-years-old and became almost totally paralyzed within six months. He learned that his long time intention to donate organs was not going to be easy.

Health & Wealth

A Dying Man’s Last Wish Ends In A Fight To Donate His Organs

Karen Shakerdge

At 44-years-old Dave Adox was facing the end of his two year battle with ALS, also known as Lou Gehrig’s disease. He needed a ventilator to breathe and...

Arts and Culture

'I Am Breathing' highlights the human aspects of dying

Harum Helmy

This story is part of True/False Conversations, a series of in-depth interviews with the filmmakers of this year’s True/False Festival. Find the rest of…